Back from the Cleveland Clinic

I am too tired to go into detail, but the doctor says I have New Daily Persistent Headache. Thank you, Captain Obvious! This is an actual, official diagnosis, believe it or not. As with most cases, my NDPH is idiopathic: that is, they have no idea what caused it. AND it’s incredibly difficult to treat.

But all hope is not lost. The doctor has prescribed a new prophylactic that will take at least a month to kick in, and some more medicine that might help with the pain until then. And he gave me an injection to deal with today’s headache. And he says I must stop using all those painkillers because they’re making things worse. As for the three-week pain management program, I might well do it — it looks like a very good fit for me, everyone thinks so — but there are no spots open till May at least.

I may write more on this.

In the meantime, you can amuse yourself by taking a look inside my skull. These are a few of the 818 images from the MRI they did:

Brain #1
Brain #2
Brain #3
Brain #4
Brain #5
Brain #6
Brain #7
Brain #8

23 thoughts on “Back from the Cleveland Clinic

  1. marycarney March 14, 2011 / 11:30 pm

    Not many bloggers REALLY let you inside their head quite like that!! 🙂
    I’m praying for you tonight, and hoping the new treatments are effective, and that the doctors are on the right track.

    • maureen March 18, 2011 / 4:07 am

      Could not be said better! Best of luck with this course of treatment. I couldn’t have coped with brain-pain as well as you are doing. Anticipating a mammogram (horrors!) has me all in knots. As for needles, forget it: the doctor has to be sedated before he deals with me.

  2. Ally M March 15, 2011 / 2:52 am

    Have they ruled out fibromyalgia and TMJ in your overall diagnosis?
    Both are earmarked by persistent headaches and both are different in scope.

    • Meaghan March 15, 2011 / 2:35 pm

      I think a diagnosis of New Daily Persistent Headache means they’ve ruled out everything. It’s a diagnosis of exclusion.

      • Ally M March 17, 2011 / 6:40 am

        However I have to say that most doctors cannot spot fibromyalgia–only a rheumatologist–as there are only a few symptoms and a dentist would diagnose TMJ so I don’t think your doctor can rule out other things he isn’t skilled to spot.
        Just my 2 cents worth. Glad to hear the steroid is working though.

    • Meaghan March 15, 2011 / 11:03 am

      Yeah, I figured something like that might happen. Shrug.

      • forthelost March 15, 2011 / 1:59 pm

        Well, apparently throwing up after eating too much means you’re bulimic, getting drunk with some friends means you have substance abuse problems, getting your credit card number stolen makes you obsessive-compulisive, and being interested in missing people and the holocaust means that you’re an evil person. Who knew?

      • Purple March 16, 2011 / 12:13 pm

        The title says Missing Children’s Web “Bog”.

        She lost me right there. 🙂

    • Meaghan March 15, 2011 / 9:04 pm

      Season finale to the Not-Clark Soap Opera?

      • forthelost March 15, 2011 / 10:10 pm

        Wouldn’t it be the Not-Rockafeller soap opera?

      • Sara March 16, 2011 / 6:57 pm

        I couldn’t remember his real name and my computer is too slow for me to go back and look it up. I still don’t know it. Christian something?

  3. Petra March 15, 2011 / 9:40 pm

    I also am very interested in missing people and get mirgranes so bad that occasinally I hallucinate. Does that mean I’m a crazy evil person? dont worry about it meaghan the work you do is amazing 🙂

  4. Jill Volker March 15, 2011 / 10:42 pm

    I love the fact she has so many inaccuracies that just makes her look incompetent. But hey to each their own right. Some makes a negative blog because they don’t get their way… she should just cry me a river.

  5. Zoe March 16, 2011 / 4:57 am

    To be honest I have a bit of an obsession with missing people too, morbid too I guess ;o) I also find babies being swapped at birth fascinating …

    And that chick is a crack pot herself so who is she to judge whether someone else is? What a lot of time and effort to spend banging someone else.

  6. Princess Shantae March 16, 2011 / 9:16 am

    Where’d she get this Dallas Fort Worth thing, when she has your Ohio address right on her site? That’s realy weird. I don’t think I ever saw any mention of Dallas Forth Worth on this blog. You even said you went to school in Arkansas so that can’t be it either.
    I knew that biting the dust business was going to come back around to bite you. 🙂 Sadder but wiser?

    • Nicole March 16, 2011 / 9:43 am

      This is what I think- you know your boyfriend lives in Fort Wayne, as in INDIANA? I remember this all the time because that is where I am from, I grew up there, my whole family lives there still (I now live in MI). And I thought that was cool that you spend so much time there in my home. BUT I think she read Fort Wayne, and not living in the US for years, assumed or thought it was Fort Worth, and that is where she got the Dallas Fort Worth area. I bet you that is where.

      • Meaghan March 22, 2011 / 2:40 pm

        I think I might know why: Michael has a large branch of his family in the Dallas area. Perhaps Jennifer discovered a bunch of Lianezes living there and assumed he was among them.

  7. J.A. Scrambles-Ashmole, Bart. March 16, 2011 / 12:35 pm

    All I got to say is, haters got 2 hate and playas got 2 play. Play on Charley Project! Sticks and stones, sticks and stones. They did themselves no favors with that kind of screed.

  8. amy March 16, 2011 / 5:05 pm

    That girl’s entire rant is so slanderous that you could prolly sue her for all $6.98 she has in her bank account. It’s interesting to me how much this girl truly believes her own delusions and projects them on you. It’s called ” Freudian projection” folks. Sheesh….

  9. Kat March 16, 2011 / 11:21 pm

    Wow. I resisted reading this for a while because I thought it was another rant against mp sites, but, again, wow. This girl is going to believe what she wants to. Good job there, parent. All that anger and bile, obviously there is something else going on. And it is not M’s fault. If you were so secure in how you grew up, why in the world take it out on someone who is only POSTING the case? And trying to bolster the arguement against ONE site by personally attacking the administrator? I know, I have spelling errors. Shoot me. Look up your own file, and take it out on other newspapers or sites or whatever. Jeez. I…yeah, that’s about it. Good to you , M, for ignoring it. Who’s next to line up?

    • Meaghan April 5, 2011 / 11:31 pm

      Got first response to the nasty blog entry (I mean, the first from someone who doesn’t know me). Some guy I guess randomly found the entry and wrote to me to ask what on earth had I done to make the blogger so angry with me. I am heartened by this. He was a stranger to both of us but he could tell she had a vendetta against me for some reason.

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